So yesterday I was having a really bad spasm attack and I just got back from the bathroom and my ankle was just dislocated my on trying to transfer onto the toilet. Thank God I was holding onto the side. rail for dear life.
I injured myself again on the second transfer back to my chair then by the time I managed to get my chair me in the pump out the door and into my room I still had to plug the pump into the wall
I just sat in my wheelchair for like 30 to 35 minutes and just cried. Why did I have to get sick? Why did I have to get all the conditions I did? Why did they all have to be so hard to treat? Why did they all have to be so lhard to treat? Why don’t doctors always want to help those with rare diseases? Why is all the money being sent to cancer research when there’s just as many other people with rare diseases has cancer patients? Why couldn’t I get a condition that every doctor believes in? Why couldn’t I get a condition where there was a factor treatment? Why couldn’t I get a commission that was curable?? Are just some of the thoughts running through my head and that 30 minutes.